Although it has been a pretty rough 5 weeks, the last 4 days
has shown some small improvements to give us some hope. My stomach is certainly consistently better
(although still not completely normal or problem free). My arthritis, after no improvement at 1 week
of 30 mg, seems to be improving slightly at 60 mg over the past 4 days. Enjoyment of this improvement has been
dampened by my jaw getting even worse with a dislocation on Sunday. I’m feeling generally stronger and when I get
up to help in the kitchen, I don’t feel
dead tired for 10 minutes instead of 3, which is nice. I still have to be really careful because any
sort of increased motion can set off a flare for days, so I have to protect my
joints and be smart about repetition. Of
course Charles is still the most amazing partner taking care of most chores and
just being fun and supportive throughout!
The doctor is still pretty concerned about how active my
arthritis/stomach problems are and wanting to keep our treatment on the
aggressive side to get this under control.
This means I will stay on the 60 mg of prednisone for another 2 days and
then start tapering 5 mg every 5 days, but only if things are improving. We both agree that my slight improvement is
promising but that it doesn’t seem like we have one the battle so we need to
make sure we don’t reduce the prednisone too quick and end up behind the 8 ball
again.
Overall, I’m feeling more positive about the improvement,
although continuing to adjust my expectations that this pregnancy will likely
be hard throughout (*something my Dr echoes and wants us to be prepared
for). I feel my current health is
getting closer to the point that would be endurable with a decent quality of
life for the next 6 months. I am looking
forward to feeling the baby and seeing the baby more in me, although the last
few weeks I have noticed more of a baby bump developing despite being about 2
lbs down from my starting weight (see pic).
Lastly, I am really sad I won’t be seeing all of Charles’
family next week. You know how much I
love seeing and spending time with all of you and although we both were very
excited to come, it just wasn’t in the cards.
Here’s hoping it can happen in the next month or two!
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